Author: Admin

Julien Update (9/22/2018) Hi everyone,After an arduous 2 week wait, we received Julien’s 24-hour EEG results....unfortunately they were abnormal again.At this point, his neurologist wants to do a repeat EEG in October after we return from doing the stem cell therapy in Mexico. If his results come back normal, they...

Julien Update (9/14/2018) Hi everyone,After an arduous 2 week wait, we received Julien’s 24-hour EEG results....unfortunately they were abnormal again.At this point, his neurologist wants to do a repeat EEG in October after we return from doing the stem cell therapy in Mexico. If his results come back normal, they...

Julien Update (9/4/2018) Hi everyone!I can’t believe it’s already September! It seems like only yesterday that our sweet boy was born and now he’s 7 weeks old. Thank you SO much for all of your love, support and donations towards Julien’s treatment……we reached our goal and we are so incredibly...

Julien’s EEG Take 2! (8/20) Hi there, today Ken and I brought Julien to his neurologist’s office for a repeat EEG. He had a 1-hour EEG a week ago and it came back slightly “abnormal.” They saw some “spikes” on the left side of his brain and wanted to do...

Julien's Update 8/14 Thank you for your patience on waiting for another update as this week has been very busy for us. Julien had an occupational therapy appointment where they checked his muscle tone, his bottle feeding skills, etc. They provided some recommendations of where we should stretch him out...

Julien's Update 8/1 Julien has been doing extremely well since he has been home for a week. He has kept us very busy with multiple doctors appointments… I think he has more appointments than the president. Tomorrow he has a repeat hearing test and we go down to children’s healthcare...

Julien's Update 7/23 We received a very nice surprise this morning that he was ready to go home tonight. We have spent the whole day learning what we needed to regarding medicine that he has to have for the next month or two to prevent seizures, preparing his bottles, etc....

Julien's Update 7/22 Today was a little rough for poor Julien. He got circumcised this morning. He handled it well and they gave him some Tylenol to ease any discomfort. They have been carefully watching how he eats which is the main precursor for when he can go home. They...

Julien's Update 7/21 Today Julien had the rest of his hearing test and everything appears to be totally normal. They do want us to still do a follow up in a few weeks just to make sure nothing has changed but everything looks very good. He is getting better at...

Julien's update 7/19 Thank you so much for checking up on us. Your prayers and concern mean the world to us. Today was a very busy day . The neurologist said there was “moderate” damage all over the white matter of the brain according to the MRI. Multiple doctors are...