Year: 2018

Julien Update-Day 3 (9/26/2018) Hi Everyone!Julien here. Thank you so much for all your messages, calls and support! I have felt the love and I know that my mommy and daddy have as well. They have really needed it throughout this entire journey. After all, I gave them quite a...

Julien Update-Day 2 (9/25/2018) Day 2Hi everyone, Today marks a very important milestone— the 3rd day in a row that our baby slept through the night!!!! I think he likes it here in Mexico:) Today also marks another important event….day 2 of 3 of the G-CSF shots that are stimulating...

Julien Update (9/24/2018) Our journey in Mexico has begun! We are so proud of our sweet baby…….he literally slept all the way from the security check point at Hartsfield in Atlanta, all the way to the arrival to our apartment where we are staying in Mexico. When you get older,...

Julien Update (9/22/2018) Hi everyone,After an arduous 2 week wait, we received Julien’s 24-hour EEG results....unfortunately they were abnormal again.At this point, his neurologist wants to do a repeat EEG in October after we return from doing the stem cell therapy in Mexico. If his results come back normal, they...

Julien Update (9/14/2018) Hi everyone,After an arduous 2 week wait, we received Julien’s 24-hour EEG results....unfortunately they were abnormal again.At this point, his neurologist wants to do a repeat EEG in October after we return from doing the stem cell therapy in Mexico. If his results come back normal, they...

Julien Update (9/4/2018) Hi everyone!I can’t believe it’s already September! It seems like only yesterday that our sweet boy was born and now he’s 7 weeks old. Thank you SO much for all of your love, support and donations towards Julien’s treatment……we reached our goal and we are so incredibly...

Julien’s EEG Take 2! (8/20) Hi there, today Ken and I brought Julien to his neurologist’s office for a repeat EEG. He had a 1-hour EEG a week ago and it came back slightly “abnormal.” They saw some “spikes” on the left side of his brain and wanted to do...

Julien's Update 8/14 Thank you for your patience on waiting for another update as this week has been very busy for us. Julien had an occupational therapy appointment where they checked his muscle tone, his bottle feeding skills, etc. They provided some recommendations of where we should stretch him out...

Julien's Update 8/1 Julien has been doing extremely well since he has been home for a week. He has kept us very busy with multiple doctors appointments… I think he has more appointments than the president. Tomorrow he has a repeat hearing test and we go down to children’s healthcare...

Julien's Update 7/23 We received a very nice surprise this morning that he was ready to go home tonight. We have spent the whole day learning what we needed to regarding medicine that he has to have for the next month or two to prevent seizures, preparing his bottles, etc....